Update on Mary Beth Miller

I would like to give everyone an update on Mary Beth. Our daughter is not the little girl we had before she went into surgery. She can not respond to us, she can not hold things, her hands are very shakey, her legs are moving as if she are trying to ride a bike. We are told that the condition is called Choreoathetosis, or post pump chorea, we are told that this is very rare and that she could recover from this, it could take days, it could take months, or years if ever. We are being told that 25% to 30% of patients that get this do not recover, we have to pray that she is not in this range. We still need to have an MRI done to see if this is what is going on, but all of her semptums are leading to this, we can not have the MRI as long as she has the pacing wires in. I will try my best to update as I can, we are staying with her all day at this point and coming home to sleep. Please pray for our little angel and for Mark, Macon and I, this is very hard