Thursday, November 17, 2011

Update on Mary Beth Miller

Hello Everyone,

Mary Beth started school sections this week, she will have school 3 days a week, Monday, Tuesday and Thursday for an hour each day, thanks for your help with getting this done Mrs Jane, we love you.

She has been telling me a lot this week that she wants to go home, it just breaks my heart, not sure what to tell her. We saw Dr Kirklin a couple of days ago and he is getting calls for hearts, but he has not gotten the call for the right size heart yet. The good thing is the more calls he gets means that we are getting higher on the national list which is great. We thank God for him everyday, he is such a great doctor and we know that he is not going to except anything but the best heart for Mary Beth.

Mary Beth has had a touch of a cold this week, there has been a lot of that going around in this area. Mark and Macon have also had it, so far I am ok. She has a really bad cough, so we are watching that to make sure it is not fluid build up. She is still doing very well on the meds for her heart function, we are still seeing that she is getting tired when she is out walking on the floor or playing in the playroom.

Please continue to pray for Mary Beth and for us, this gets harder every day. Please pray for the nurses and doctors taking care of her, I really do not know where we would be if it were not for the nurses on W5 north and the nurses from CICU, as well as other sweet friends and nurses all over the hospital that the Lord has put in our lives, most days I would go crazy without them, they truly have become family to us and we just love them so much, such a sweet blessing to our family.

I will do my best to post an update each week. Thank you for your continued prayers and love.


Love,

Stacee

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